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Study Overview

The medical care of children with Down's syndrome has improved a lot over the last fifty years, but there is still a lot more to be achieved. We hope that by collecting information from babies and children with Down's syndrome, we will find out more about their health, enabling us to look after these babies and children even better in the future.

Many people have been involved in planning the study, including:
  • The Down's Syndrome Association
  • The Down's Syndrome Medical Interest Group
  • Families of children with Down's Syndrome
  • Health professionals involved in the care of children with Down's Syndrome
  • Researchers at the University of York

Any families with a child born with Down's syndrome after 1st May 2006 can join the study. Most families will be invited to take part by a health professional involved in their care soon after the birth of their child.

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